The NF Network is pleased to announce its 1st Annual Great Steps4NF Walk for Neurofibromatosis in Bethlehem, PA on Saturday, May 14, 2016. For more information or to register visit our website at http://www.nfnetwork.org/nf-happenings/great-steps/pennsylvania-bethlehem.
The “Great Steps4NF Walk,” is sponsored by The NF (Neurofibromatosis) Network and will benefit the disorder by raising awareness and research funds. NF research is aimed at identifying a treatment and cure for this genetic, progressive nervous system disorder and the NF Network has been working to the end since 1988.
The Event will kick off at 9:00 am at Bethlehem Township Municipal Park at 2900 Farmersville Road, Bethlehem, PA 18020.
Registration is $25 adults, $12 children (ages 4-10), and $6 children (3 and under) or, Raise $100 and get FREE registration. There is a $5 early bird discount on Adult registration, PAEARLY, good until April 14, register by April 28 to guarantee a FREE event t-shirt. Walkers can choose either to walk as an individual or to join a team.
Along with the Walk we’ll have food, face painting, NF tattoos, NF Champion medals, team awards, a raffle/silent auction and the opportunity to chat with others affected by NF.
The NF Network encourages and appreciates business contributions either in the form of event supplies, raffle items and/or by becoming a Business Sponsor. To learn more about this program, please contact Yvonne Glass as listed below or read more at http://www.nfnetwork.org/uploads/files/Business%20Sponsorship%20Levels%2815%29.pdf.
What is NF?
Neurofibromatosis (NF) is a genetic disorder that involves the uncontrolled growth of tumors along the nervous system, which can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and death. NF is the most common neurological disorder caused by a single gene and is more common than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s disease and Tay Sachs combined. Because of NF’s close connection to many common diseases and disorders, such as cancer, learning disabilities, heart disease, memory loss, and brain tumors, research on NF stands to benefit 175 million Americans in this generation alone.
The Neurofibromatosis Network was founded in 1988 as a 501(c)3 non-profit organization to join together several independent state and regional NF groups wishing to work together on national projects.
“The Mission of the NF Network is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.”
Media Contact:
Yvonne Glass, Walk Program Coordinator
The NF Network
213 S. Wheaton Ave.
Wheaton, IL 60187
630-510-1115 phone
630-510-8508 fax
yglass@nfnetwork.org
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